Hello, my blog following friends! Sorry, it’s been a year (or two).  I only seem to write when inspiration hits me, like now, it’s 9:30 pm on July 3rd, and as I was heading to bed, boom! Like a firecracker, inspiration hit me! I should post a blog about Epilepsy and fireworks! A type of…

Epilepsy is a neurological condition characterized by unpredictable seizures. It affects around 3 million people in the United States alone, and can have serious implications for those living with it. It’s important to understand the causes of epilepsy, how it can be treated, and what kind of lifestyle changes may help manage its symptoms. My…

These Symptoms Makes You Wonder Do you or a loved one have Seizures? Ataxia? Associated Developmental Delay? You could have a genetic disorder! In this article will discuss: our journey through diagnosis to present day, and what exactly is PADDAS/PUM-1 genetic disorder. My son was born a week early due to a planned c-section. His…

I first want to welcome you to my blog, Superhero Joey’s World! If you are wondering what this blog place is all about, feel free to look around! I am usually an open book. Below I wanted to share some information on who’s in the right place for this blog, but if you don’t fit…

Has your child been diagnosed with Epilepsy? I know it’s overwhelming! I am a mom to two myself. But, here are 5 things I wish I had known once my sons were diagnosed: The diagnosis was the hard part! If you were like my younger son, figuring out his diagnosis took years and several doctors,…

Hi and Welcome! I’m Amanda Skou, an author. I’ve said this in previous posts, I know, but I have three children and two of them have been diagnosed with Epilepsy! It’s been a long road of finding out what was going on with my children. We now, after extensive research including genetics testing, have answers,…